Rare Disease Day

Yesterday was Rare Disease Day. Many children with complex medical issues and developmental delays have rare diseases. Please support @Global Genes Project in their efforts to bring attention to rare diseases.
http://globalgenes.org/
http://www.undiagnosed-usa.org/

Great letter from the President showing his support.
I truly believe Ryan has a rare disease or disorder that we havent found a name for yet. The more support this cause gets the more likely we will be to find our ever elusive diagnosis.